Sunday, April 12, 2009
He is Risen!
The Resurrection1After the Sabbath, at dawn on the first day of the week, Mary Magdalene and the other Mary went to look at the tomb.
2There was a violent earthquake, for an angel of the Lord came down from heaven and, going to the tomb, rolled back the stone and sat on it. 3His appearance was like lightning, and his clothes were white as snow. 4The guards were so afraid of him that they shook and became like dead men.
5The angel said to the women, "Do not be afraid, for I know that you are looking for Jesus, who was crucified. 6He is not here; he has risen, just as he said. Come and see the place where he lay. 7Then go quickly and tell his disciples: 'He has risen from the dead and is going ahead of you into Galilee. There you will see him.' Now I have told you."
8So the women hurried away from the tomb, afraid yet filled with joy, and ran to tell his disciples. 9Suddenly Jesus met them. "Greetings," he said. They came to him, clasped his feet and worshiped him. 10Then Jesus said to them, "Do not be afraid. Go and tell my brothers to go to Galilee; there they will see me."
Saturday, April 11, 2009
Don't Think of them as Maternity Pants
A couple weeks ago I bought 2 pairs of maternity pants. Yes, you heard me. Maternity pants. God bless whomever invented these things. They're soft, comfortable and best of all FLATTERING! They don't have that annoying gap in the back that happens with regular jeans. They also don't have any buttons or zippers, so that bathroom urgency (you know, the kind you get when you're on antibiotics) isn't a problem either.
So here I am today looking at the business end of boredom, but glad to at least be comfortable. A girl can only wear pajamas so many hours of the day, you know?
Wednesday, April 08, 2009
FREE AT LAST!
My mom was my transportation home and she brought along some "welcome home" pajamas to encourage me to continue to take it easy now that I'm home. The first thing I did after eating lunch was check on the rabbits. They were really skittish around me, but once they figured out that I was going to offer them food they seemed to be a bit more interested in me.
Brad has forbidden me to do much of anything (I love it that he treats me like a princess!) and basically just wants me to rest as much as I can. So right now I'm hanging on in the bedroom getting caught up on email and enjoying the wonderful smell of dinner cooking. My mom made us her famous "Peek-a-Boo" chicken. It's one of our faves. Brad stopped at the grocery store last night, so the fridge is nice and full too. I can say enough how good it is to be home.
It's always just a bit overwhelming to be home. Everything seems so big. Our bedroom for instance is larger than the hospital room and it's attached to our master bathroom. It's pretty cool not to have to drag an IV pole around with me to the bathroom, not to mention I don't have to keep track of how much I'm peeing. That reminds me, I probably should be drinking a lot of water now that I'm not hooked up liquid IVs TKO (that means "to keep open" my IV line for those of you who don't speak hospital.)
Well, that's it for now. Thank you all SO MUCH for the prayers, cards, phone calls and visits. It was wonderful to be supported on so many different levels. I only hope that I can be that much of a blessing to others in need.
Monday, April 06, 2009
Not a Bad Day
Sunday, April 05, 2009
Going Stir Crazy
Saturday, April 04, 2009
Update from the Inside
I am making some progress though. My PFTs yesterday show some improvement in my FEV1. It's up to 1.48 from 1.4L on Tuesday. The really good news is that my vital capacity (the total amount of air my lungs take in) has improved dramatically. This means that I'm finally clearing out a lot of the gunk that was clogging up my lungs. This has been a long time comming.
I've gotten more serious about my CPT, and am asking the respiratory therapists to do not just my uppers, but my sides as well. It's painful to be beating on my ribcage that much, but the doc has prescibed morphine to help with that. Amazingly, the morhpine doesn't make me tired and sleepy like I wish it would. I'd give just about anything right now to be able to sleep better.
Thursday, April 02, 2009
She's on IV Tobramycin and Meropenem, as well as inhaled Colistin. We've been trying to avoid Tobra for the longest time because of the effect it has on her hearing, but it's worth trying given how crappy she feels. They'll just need to be really careful with the dosage. I was really concerned that the last two treatments have included both Colistin and Chloramphenicol, which are both pretty extreme, so I'm glad that only one of those is in this "cocktail." Having the Colistin inhaled is new for us, too, so I don't know how that might work out.
Thanks for all your prayers and support, everyone. It's nice to know that people care, even though there really isn't much that anybody can do right now. Even I feel a bit helpless this time... there really isn't anything to say about this disease that we haven't already said, and our coping mechanisms are so battle-tested that there's little left to refine. When I visit there's really nothing to do but sit with her, but since she appreciates my presence it's what I do.