Wednesday, October 29, 2008
Don't Miss this Event!
The party starts at 4:00pm SL time. If you're new to Second Life and would like some help getting your avatar put together and dressed for the party, now's the time to sign up with secondlife.com. I'm more than happy to help you out getting your free account started.
So what can you expect to find over at Boomer Island today?
-Pumpkin treasure hunt (Begins at 5:00)
-opportunities to chat
Plus, if you come in a costume you'll receive $25L and be entered for a chance to win an Amazon.com gift certificate.
How do you get there? First you need to sign up for a free account with Secondlife.com. After you've created your avatar (your character for SL) click on the blue button at the bottom of your screen that says "Map". Enter the words "Boomer Island" in the search box then click "Teleport." That will take you to the main area of the CF University campus. I'll be there waiting to help you find a costume or to just help you out as you get started.
Hope to see you there!
Monday, October 27, 2008
Starting off a Good Week
In other news, I just couldn't stand looking at Gimli's empty cage, so we took a trip to the animal shelter. We adopted an adorable pair of twin bunnies. They're not very socialized yet, but they seem plenty happy as they bound around the loft together leaping and twisting mid-air. (That's always a sign of a happy bunny.) We figure that by having a bonded pair, they won't get lonely. Their names are Coral and Sandy. I'll post pictures eventually.
I've been noticing all day how good it feels to BREATHE. I'm so grateful for every breath and praise God for how he sustains me. I'm even more grateful for every breath that come easily. To have the energy and ability to do stuff around the house, take care of some errands and still do the fun things I want (like play with bunnies!) without huffing and puffing and getting short of breath is a tremendous feeling. This is probably the most successful clean-out I've had in a couple of years. I hope it lasts all winter and into the summer. That would be phenomenal.
Sunday, October 26, 2008
Feeling Well for a Change
I feel well. One of the first things I noticed last night while falling asleep was that breathing felt natural and easy. No more shallow breaths or nighttime oxygen (or daytime oxygen for that matter!) I could lie flat and not get a headache. I didn't wake up periodically throughout the night with tons of sinus pain and pressure. The sinus surgery must have been a huge success. I can taste more foods. I can smell more scents (which is good and bad.) One of the scents I noticed first was that Brad had switched deodorant. It was way too musky so I made him go back to the one he used before. Ahhhh...familiarity.
My chest feels quite open, and my FEV1 continues to climb. I'm quite curious what it will be by the time I'm back at the doctor for a follow-up. There's still just a little bit of what I call "lung mud" left in there. That's the gunk that's usually the deepest and nastiest and takes the longest to loosen up. It's not uncommon for us CFers to cough up the grossest stuff at the END of a clean out or tuneup, rather than the beginning.
Even being on steroids is going well. My blood sugars haven't been too wacky which is good news. My poor pancreas almost always takes a brutal beating from the prednisone. So far that doesn't seem to be happening. I don't even have moon face! I do have that classic "kangaroo pouch" though from the steroids. I've decided I'm not going to be embarrassed or get bent out of shape just because my stomach isn't flat at the moment and might not be for months. The fact is, I'm finally healthy and feeling well. My body shape will come to reflect that more accurately soon enough. For now though, it's back to the "big jeans" and elastic pants.
I just want to say thank you so much to all of you who read my blog and who have been keeping up with Brad for the updates. Your support, encouragement and mostly your prayers mean so much to me. In what could be such an isolating world of CF, I've got all of you on my team and that is more of a blessing than I deserve.
Friday, October 24, 2008
Goodbye Hospital, Goodbye Gimli
Speaking of emotions, I'm sorry to say that our beloved little friend Gimli died in my lap tonight. I came home to find him barely breathing, his food and water dish untouched. Apparently he got a hairball which quickly progressed to a bowel obstruction and he just couldn't rebound. It just so happened that where we were sitting on the floor we were leaning up against a rainbow on the wall that was reflecting from our bedroom. Gimli shuddered a few times, gave that last little "rabbit wail" and then it was over.
We laid him to rest in little knitted blanket that I had worked on the last couple days. (Kelly, I can now relate to how you feel about losing your cat not to mention your blanket). Gimli will be much missed.
At yesterday's PFTs her FEV1 was up a little bit and her FVC was up by a lot.
Tuesday, October 21, 2008
Update on Lauren - surgery today!
I just realized that I've been putting updates on the forums Lauren visits, but I hadn't posted to this blog to let you know how she's doing.
She's (finally!) getting sinus surgery today, at 6:10pm (PDT, of course). Her CF doctor is optimistic that, once her sinuses are clear, we'll be able to deal with her lungs in a much more lasting way.
My mom is coming down to wait through the surgery with me. Please keep Lauren in your prayers!
UPDATE: The surgery went GREAT. The doctor told us that everything turned out well, and Lauren was up and talking (and asking for company in the recovery room) not long after he was done. I stayed around until she was ready to fall asleep... it's been a long day for us both, and I'm about ready to do the same.
Thanks for all your support and prayers, everyone!
Monday, October 13, 2008
Losing My Mind!
I'm going crazy here in the hospital. Part of that I'm sure is because of the prednisone. It makes me want to peel my skin off just to have something to do! The last three nights have been better for sleep though, which is good.
Part of what makes this stay so annoying is that this time being in isolation really does feel like isolation. My television has 100 channels of all the same program. I don't know how that happened, but it's definitely not fun. I'm so glad that my mom is letting me borrow their little DVD player.
Yesterday the time actually went by pretty quickly. My dad came for a few hours. When he left Brad showed up. About 5 minutes after Brad got here my cousin Jared (aka "Big Jared" for those who know my family) came by too. We had fun talking and laughing together. Saturday had also been a good day for visitors. Kelly and John stopped by and they didn't come empty handed! They brought some ice cream contraband...mmmm...and the first two books of the C.S. Lewis space trilogy. My attention span is pretty short, so getting through a C.S. Lewis book is taking some effort. Lots of big words.
Tonight my in-laws will probably stop by for awhile. It will be nice to see them. Even though they haven't a lot of time to adjust to having a family member with CF, they are doing a good job of being supportive. They ask the right questions and are understanding of my limitations. I sometimes forget how helpless caregivers and people in my support system must feel to watch me go through these hospital visits.
That's about it for now. I'll try to update again as I'm able. Thanks for your continued prayers. They are appreciated.
Friday, October 10, 2008
Friday Update from the Hospital
Having Katrina here is making things a bit more tolerable for me. We've talked on the phone a few times and each time I hang up I feel so thankful that there's someone who knows what I'm going through. (She sounds pretty darn good by the way.)
Brad has been doing a great job of keeping me contented and peaceful. He's done some very thoughtful things for me while I've been here and for that I'm so thankful. The other day he even surprised me by bringing my CD player and my current favorite CD, along with one that he made especially for me. Awwwww...isn't he great?
There's no word on how long I'll be here. I don't dare ask either. I have a feeling it might be a lengthy visit. We seem to have the pain under control finally, which is good. Now we just need to find a way to keep the prednisone from keeping me awake all night.
That's it for now. Thank you all so much for your prayers and warm thoughts. Daily I'm thankful for the support system I have in my husband, family and online CF community. You guys are all awesome.
More to come in a few days...that is, if I can snag an Internet connection again.