Breathing Deeply: My Life With Cystic Fibrosis

When I visited yesterday, Lauren looked the best she had in at least a week. (In no small part due to her previous visitor, I'll wager.)

She's on IV Tobramycin and Meropenem, as well as inhaled Colistin. We've been trying to avoid Tobra for the longest time because of the effect it has on her hearing, but it's worth trying given how crappy she feels. They'll just need to be really careful with the dosage. I was really concerned that the last two treatments have included both Colistin and Chloramphenicol, which are both pretty extreme, so I'm glad that only one of those is in this "cocktail." Having the Colistin inhaled is new for us, too, so I don't know how that might work out.

Thanks for all your prayers and support, everyone. It's nice to know that people care, even though there really isn't much that anybody can do right now. Even I feel a bit helpless this time... there really isn't anything to say about this disease that we haven't already said, and our coping mechanisms are so battle-tested that there's little left to refine. When I visit there's really nothing to do but sit with her, but since she appreciates my presence it's what I do.