Thursday, April 02, 2009
She's on IV Tobramycin and Meropenem, as well as inhaled Colistin. We've been trying to avoid Tobra for the longest time because of the effect it has on her hearing, but it's worth trying given how crappy she feels. They'll just need to be really careful with the dosage. I was really concerned that the last two treatments have included both Colistin and Chloramphenicol, which are both pretty extreme, so I'm glad that only one of those is in this "cocktail." Having the Colistin inhaled is new for us, too, so I don't know how that might work out.
Thanks for all your prayers and support, everyone. It's nice to know that people care, even though there really isn't much that anybody can do right now. Even I feel a bit helpless this time... there really isn't anything to say about this disease that we haven't already said, and our coping mechanisms are so battle-tested that there's little left to refine. When I visit there's really nothing to do but sit with her, but since she appreciates my presence it's what I do.
Thanks so much for your update on Lauren. Please tell her hello for me and that I'm on my way to see my granddaughter, Ella, next week.
You are just as eloquent as your wife!
If you haven't yet, stop by cf.com and check out my blog. I had posted about Lauren and lots of people left messages for you two.