Saturday, March 21, 2009
Today my CF doc finally came to see me. He's a bit baffled by this whole thing too. He's going to discontinue some of the IVs. We're slowing tapering the prednisone. No matter what we do though, I'm just not getting better fast enough for my taste.
This stay has been hard. It's really eating at us and making us feel quite drained. We covet your prayers for healing and peace of mind. All I really want to do at this point is go home. I've been on IVs constantly since February 9th and my body has decided it's done responding. I hate this. We hate this. We hate it a lot.