Breathing Deeply: My Life With Cystic Fibrosis

Today has been a nice restful day, even though I'm in a unit where they take my vital signs every 4 hours. (Even throughout the night! Gah!) I slept better last night than I had in a couple days, and was able to take a couple of cat naps during the day too. The best part of all this is that I actually feel pretty darn good. Yesterday I had my pulmonary function test and amazingly I got 2.02L on my FEV1. I've never gotten quite that high in the hospital before. Usually what happens is I get really close, like 1.95 or something, and the doctor sends me home on IVs hoping that I'll gain those last few cc's of lung power on my own.

This time I insisted that I not be sent home just yet. That was a very difficult decision because it meant I'd be missing Ava and Julia's first birthday party. I'll also have to miss out on my sister's wedding reception/brunch. Both of those are the type of things that only happen once, and it's frustrating to me that CF forces me to bail out on them. Still, I know I made the right choice and will be experiencing greater health for it in the long run.

Thank you everyone who has been praying for us these last couple weeks. We've definitely felt it.