Friday, August 15, 2008
Tales from the Hospital
We're trying a different combination of antibiotics this time in hopes that it will be more effective in wiping out this infection. I'm on tobramycin, which is something I was on a lot in the past. The biggest drawback to that medication is that it's ototoxic (damages the ears.) I have substantial hearing loss and wear hearing aids because of the damage I've sustained from this potent drug. Nonetheless, I'd much rather sacrifice my ears than my lungs at this point.
One of the doctors who saw me today was a rheumatologist. He was able to diagnose my severe joint pain as CF-associated arthritis. This type of arthritis isn't that common. It happens to a small percentage of CF patients. Generally a flare up will accompany or precede a pulmonary exacerbation, which is how it's been for me this time. There's nothing we can do to prevent flare-ups. The best we can do is manage the pain when it happens. Right now I'm on a reasonable dose of vicodin. I say reasonable because it takes care of the pain without turning me into a zombie or putting me to sleep.
I had a fun visitor tonight; Kelly! She was kind enough to bring her smiling face and a bag of Cinnabons with extra icing. She said they'd help fatten me up. I sure hope so. I can hardly believe she brought those. I had been craving them the last time I was in here, but there aren't any Cinnabon shops nearby. Kelly happens to live near a mall that has them. Mmmmmmmm.
Brad came by at the same time and we shared a meal together. I've decided that take-out from the Peking Palace is nowhere nearly as good as it is at the restaurant. It's all dry and cold. Yuck. Of course, that didn't stop me from eating it. I ordered a cheeseburger from the cafeteria too. Might as well keep working on my weight. I was 114 when I came in here. I hope to be really close to 120 when I get out. We'll see.