Breathing Deeply: My Life With Cystic Fibrosis

Last night I got some really decent sleep. I hardly moved at all during the night. I think part of it was the pain meds, but so what. I've been free of supplemental oxygen for 3 nights in a row now, which is definitely a sign of progress. The nurses said I had a bit of a sparkle back in my eye again today. I still don't feel completely well, but I do feel better than yesterday.

I went for a pretty lengthy walk today to stretch my legs. I needed to get the circulation going because they were so cold! I have really low blood pressure, so I'm usually cold from the knees down, and on the tip of my nose. Brad on the other hand is always nice and warm. That's one of the things I like about snuggling up to him.

Anywho, the resident (?) doctor came by today and said that my white count was 12 (compared to the 20 something it was before.) Normally white count is supposed to be between 4 and 11. He was happy with my progress. Later my CF doc finally popped his head in to see how things are going. He too said I was making good improvement but still had a way to go. He dangled the possibility of going home next week like a dirt farmer dangles a carrot in front of a donkey. Of course, it all depends on my spirometry.

Today's spirometry was a nice jump up from the last. It was 1.83L! Hooray!
I will have them again next Tuesday. By that time I'll have had 2 full weeks of antibiotic/antifungal therapy.

There's also been some talk about a possible sinus surgery. I've had it twice before and it always made a positive difference. Today they ordered the CT scan of my sinuses. Who knows if or when I'll actually need to have a good clean out in there.

All in all it was a decent day. Now I just need to get my weight back up. I'm sure that will come too once I'm back to my normal routine at home. I bulked up before without a single drop of Scandi (BLECH!) and I'm sure I can do it again. I've got a bunch of sticky buns waiting for me in the fridge at home for that exact purpose. Here I have some good snacks that my mom brought. Fiddle Faddle, Double Stuf Oreos and cheese and crackers. Soon 107lbs will be a distant memory and I'll be back to good ol' 125.