Breathing Deeply: My Life With Cystic Fibrosis

Not a whole lot is going on today, and I think that's a good thing. I'm hoping that it signals the coming of a peaceful and healthy season for me. A few weeks ago Brad and I sat down and had a serious discussion about how to really budget my time and energy so that I don't get overwhelmed. I have to admit, at first I felt like things were being taken away from me. I didn't want to have to relinquish some projects and activities. Now I see that by really zeroing in on a few things rather than trying to wrap my arms around a whole slew of stuff, I can more fully appreciate those few things. It's sort of like replacing a panoramic view of my life with a more finely tuned close up photo. All the detail and color I need is right in front of me, and it's wonderful.

From a CF standpoint, things have been going really well since I ended the tune-up. I've been getting regular, sound sleep, and I'm keeping my weight on. Brad is doing a great job of keeping me well supplied of Eggos. There's just something about Eggos and a tall glass of chocolate Instant Breakfast that steels my wool.

Lately I've been connecting more with others who have CF. There are days when I really wish that I wasn't limited to online interaction, but I know that's the way it simply has to be. As I've gotten older it has really blessed me to find others who share in the things I struggle with, and who profess the same source of hope that I do. It's encouraging to know that I can send an email to one of my CF friends and not have to explain much detail about why I'm having a rough day or a good day.

Work is going well, both the freelance stuff and my science work. There's no question about it--God has uniquely suited me for this sort of work, and has seen fit to give me a flexible schedule. Like I said in a previous post, this really is the good life. The best part is, the good life really isn't about how many things or possessions or experiences I have. It's about having the kind of peace that surpasses all understanding. I hope that people who read my blog can see that it is possible to live well and be content, even with such a dastardly disease like CF.