Monday, September 10, 2007

Looking For More About CF?







This week, September 10-16, is National Invisible Chronic Illness Awareness Week. In an effort to educate you about my invisible illness, I'm providing the following links. It is my hope that as you learn more about cystic fibrosis (CF), you will see why I and others who are affected by CF need you to help us find a cure. Any donations you make to the Cystic Fibrosis Foundation are tax deductible. $0.90 of every dollar donated goes directly to research. Please help CF stand for Cure Found!

Articles to Check Out:

Cystic Fibrosis Explained in Brief

A Day in the Life of an Adult with Cystic Fibrosis

Reflections on Growing Up with CF

Cystic Fibrosis Steals Time and Breath from Me (the written version of my speech at the Cystic Fibrosis Foundation's Annual Spring Gala, 2007.

Diagnosing CF: How a Sweat Test is Done

Preventing Pulmonary Exacerbation (Lung Infections) in CF

Understanding Spirometry to Measure Lung Function

Progression, Treatment and Prevention of Bowel Obstruction in Cystic Fibrosis

Cystic Fibrosis and Goal Setting

An Unexpected Kiss (the true story of my first date with the man who is now my husband!

Orphan Drugs Increase Options for People with CF

Understanding Pneumothorax (collapsed lung)




Also, don't forget to check out my other blogs:

Pools of Grace (Scripture and meditation)
Understanding Cystic Fibrosis

I welcome any comments or questions you may have about CF. Just leave me a comment here on MySpace, or on the blogs, or email me directly poolsofgrace at gmail dot com.

Warmest Regards!
Lauren

Comments:
Good morning, Lauren, your Pools of Grace are a blessing. Thank you for sending them to my inbox.

What is it about cf that requires fat added to the diet? I know that the body doesn't absorb certain things, but I'm not sure about the fat. I thought that it wasn't digested. Set me straight, please. The cf doctor suggested giving Ella cheese and peanut butter. I'm assuming this is to increase the salt and fat in her diet. The salt part I understand.
 
Thank you for the resources. Our daughter has CF and I'm so glad to have found your blog. As an adult with CF, do you have any opinions on dairy vs. almond/soy milk? Do you think that by eating dairy, you produce more mucus? I would love your opinion. Thank you. Elise, egussie1977@aol.com
 
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