Monday, April 24, 2006

Positive Progress!

A message from the CF Foundation...

We are pleased to report that the median survival age of people with cystic fibrosis in the United States has risen to 36.8 years--up from 35.1 in 2004!

For decades, the Cystic Fibrosis Foundation has tracked the health and longevity of patients treated through its care center network. Caregivers at these centers collect vital statistics about the health of CF patients, which skilled statisticians then analyze and publish in the annual CF Foundation Patient Registry Report.

As an interesting perspective, in the last four years alone, we have added more than five years to the median survival age of CF patients. Today’s trend of continuous improvement suggests that we are getting closer to reaching the goal of curing this disease.

We attribute the improvement in both the length and quality of life to the fact that there are now more CF therapies than ever before and even more now in development. In addition, the standardization of care and the implementation of “best practices” throughout our care center network also are having an impact.

Thank you for your dedication to the CF community. What you are doing in the lab and in the clinic is making a difference. Together, we are adding tomorrows every day to the lives of those with CF.


Robert J. Beall, Ph.D., President and CEO
Preston W. Campbell, III, M.D., Executive Vice President for Medical Affairs
Cystic Fibrosis Foundation
6931 Arlington Road
Bethesda, MD 20814

P.S. To help us increase awareness for CF and the important work we do, please feel free to forward this message. Thank you for your commitment.

Hello, found you through a search on CF. I am very pleased to see that the median age of survival has increased. Unfortunately, we lost a sweet, loving girl at age 19, April of last year.

My prayers and encouragement to you as find strength in God, family, friends and life itself. CF Foundation is close to our hearts, as is the Cook's Children hospital here that cared for our Becca.
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