Tuesday, November 14, 2006

Interesting Yes, Fun? No

Fun? There is no fun.


--Klaus Kinski








In addition to keeping track of the number of unique visitors to this blog, my Statcounter also stores information about how my visitors find this site, which pages they read and which ones they don't. Statcounter's built-in capabilities also enable me to perform a keyword analysis, which I use in determining what sort of information about CF people are searching for when they type a few select words or phrases into their preferred search engine.

The most popular keyword phrase lately is the following " fun facts about cystic fibrosis." I'm guessing that somewhere in the world there is a classroom of students who have been given the task of writing a report about a disease they've never even heard of. To them, uncovering information about cystic fibrosis is like a treasure hunt--they hope to find a nugget of something clever that they can use to make an incurable disease seem like just another entry in the encyclopedia.

If you are searching for "fun facts" about cystic fibrosis, I'm sorry to disappoint you, but there really isn't anything "fun" about this disease. It's plenty interesting though, that's for sure. Here are a few highlights of the more interesting aspects of it:

If you'd like to know more details about what is involved in my daily management of cystic fibrosis, I encourage you to visit my article "CF Doesn't Sleep" which was recently published online by Associated Content.

Comments:
The legendary Warren Warwick at the University of Minnesota asks patients at clinic visits to tell him six good things about CF. Once they get past "eating all you want" it starts getting tougher, but it is not a bad exercise.
 
Sounds interesting. I think a better exercise would be to list 6 things about life in general that are positive.

1. I have a husband who loves me and takes care of me
2. I enjoy my job and I know I do it well.
3. I live in a beautiful part of the county.
4. I've had the opportunity to travel.
5. I'm a good musician
6. God continues to protect and sustain me through the tough times.

I really don't think there's anything "good" about CF per se. CF is just something I have, it's not who I am. That's why the url for this site is LivingwellwithCF. I am able to live well and have a good life in spite of this disease.

I can see how some people would benefit from Dr. Warwick's exercise though.
 
Sounds interesting. I think a better exercise would be to list 6 things about life in general that are positive.

1. I have a husband who loves me and takes care of me
2. I enjoy my job and I know I do it well.
3. I live in a beautiful part of the county.
4. I've had the opportunity to travel.
5. I'm a good musician
6. God continues to protect and sustain me through the tough times.

I really don't think there's anything "good" about CF per se. CF is just something I have, it's not who I am. That's why the url for this site is LivingwellwithCF. I am able to live well and have a good life in spite of this disease.

I can see how some people would benefit from Dr. Warwick's exercise though.
 
hey lauren. something happened to me that blew my mind a little bit. i never have been a regular taker of creon even though i take all my other meds. so my cf center kept asking me why i don't take them routinely. my reply was that i forget and that i don't notice a huge difference when i do or when i don't. so much to my surprise they decided to test my stool to see how my pancreas was workin. the test came back normal, and showed that i had no pancreatic insufficiency whatsover!

I HAVE BEEN TAKING CREON FOR 25 YEARS!!!!!!!!!!!!!!!!!!!!!!!!!

so they told me to stop taking enzymes, i no longer need them.(and i am assumimg that i never did) so my brain is having a heck of a time trying to get used to that idea. i am sure any cfer our age could relate! just thought that was an interseting bit of info. hope you are doing well. keep up the good work! jesus loves you.
 
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